General

Epidermolysis Bullosa 101 Included in this category are resources written by members for members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

Topic	Replies	Views	Activity
About the General category General	0	850	May 30, 2018
Looking For Your Epidermolysis Bullosa Stories! General	1	72	January 10, 2024
Butterfly Skin Unmasked: The Challenge of Living with Epidermolysis Bullosa General	0	91	December 10, 2023
7 Things to Look for When Choosing a Doctor General	0	197	May 18, 2023
Spotlight on Our Moderators General	0	203	March 30, 2023
“Rare Diseases Doesn’t Have Us” – Foot and Float to Raise Awareness General	0	189	March 29, 2023
When “Rather Rare” Becomes “Done Well” General	0	193	February 22, 2023
Our New Ben’s Friends Classroom General	0	203	January 26, 2023
Spotlight on Our Board Member: John Stamler General	0	215	January 17, 2023
Ben’s Friends Members to Benefit from Cutting-edge Health Data Management Tool General	0	154	January 17, 2023
Ben’s Friends Brings Learning About Patient Support to the Next Level General	0	174	January 6, 2023
Spotlight on our Member: John aka Jokhere from Living with Polyneuropathy Community General	0	107	December 28, 2022
Hanging Out is Helping Out: The Cycle of Helping Each Other at Ben’s Friends General	0	188	December 26, 2022
Ben’s Friends Communities Can Help Advance Medical Treatments General	0	124	December 8, 2022
Ben’s Friends Communities Provide Warmth and Friendship during COVID-19 Pandemic General	0	158	December 8, 2022
Spotlight on Our ModSupport Member: Sharon a.k.a Stoney General	0	177	November 24, 2022
Spotlight: Ben’s Friends former Intern, Dr. Melissa Jones, MD General	0	199	November 17, 2022
Ben’s Friends inks partnership with ClozTalk General	0	188	November 17, 2022
The Ben’s Friends Volunteer Family is Growing! General	0	405	July 31, 2020
Rare Disease Diagnosis: Difficulties and Advancements General	0	189	November 3, 2022
Global Genes’ Rare Daily website features Ben Munoz General	0	174	November 2, 2022
Some of Ben’s Friends secrets to maintaining healthy communities General	0	134	October 31, 2022
What’s Your And? Podcast features Scott Orn General	0	213	October 27, 2022
Depression and Autoimmune and Chronic Illnesses General	0	409	November 18, 2020
Benefits of Having a Rare Disease and Chronic Illness Support Group General	0	188	October 20, 2022
Once Upon a Gene podcast Features Ben’s Friends General	0	185	October 6, 2022
Ben’s Friends Lead Interns General	0	193	October 5, 2022
Nonprofit SnapCast features Ben Munoz General	0	184	October 4, 2022
Two Disabled Dudes Podcast features Ben Munoz General	0	177	September 28, 2022
How Ben’s Friends moderators work as a team General	0	140	September 27, 2022